Tavia Marlatt refused to leave the hospital until she has an at-home care plan. Submitted photo

B.C. epilepsy patient ends sit-in, awaits answers

Tavia Marlatt and her mother, Renee, met with Fraser Health officials on Friday, April 5.

After refusing to leave Vancouver General Hospital until her health care needs were met, Langley’s 22-year-old Tavia Marlatt is a step closer to receiving what she needs.

Tavia suffers from epilepsy, and can have anywhere from six to 50 seizures a day. Last week, she was at VGH undergoing a series of epilepsy tests that revealed she’s been having seizures from three parts of her brain.

READ MORE: Langley epilepsy patient refuses to leave Vancouver hospital until needs are met

Through a YouTube channel, Tavia documented her stay at the hospital, and said she was refusing to leave the hospital until she was given at at-home care plan.

“Basically, what the plan is, is stay here until my needs are met or the police come,” Tavia explained in a YouTube video.

Fortunately, officials from Langley Memorial Hospital agreed to meet with Tavia and her mother, Renee, last Friday to discuss health care options.

Renee explained the family has been asking the Fraser Health Authority for in-home care support at their family home since Tavia turned 19. She said there is a gap in funding from when children age out of school, and become adults.

Prior to the meeting, Renee said Fraser Health has repeatedly denied funding for in-home care, and has instead suggested Tavia live in a group home.

“We want funding released to have staff at home,” she added.

On the same Friday, Tavia agreed to leave the hospital on “good faith” that long-term funding will soon be provided.

Tavia was diagnosed with epilepsy at age seven, and the severity of it increased when she was eleven.

According to Renee, Tavia’s condition was more manageable when she was school-aged, because the family had the support of her being at school during the day, with people who could administer medications if needed.

Since becoming an adult, the medical system has failed Tavia, according to Renee.

“She needs support to be successful, and hasn’t been given the opportunity to be successful, and that’s hard to see. She [Tavia] says, ‘It’s hard to connect and make friends because they’re too independent for me.’ It’s hard to watch her suffer.”

Renee confirmed there is now short-term funding in place.

After Friday’s meeting, Renee said there is now a proposal for long-term services being drafted, and she is hoping to find out more information by the end of this week.

“They [Fraser Health] recognized there’s a gap in services,” added Renee.

“This isn’t just for Tavia, it’s for any person with epilepsy.”

Fraser Health confirmed they met with the Marlatt family.

“We continue to have ongoing conversations and work on a plan to support the patient’s needs,” Fraser Health said in a statement.

Currently Renee is unsure what type of funding they will receive, but hopes it will be long-term funding to access Choice in Supports for Independent Living (CSIL) – a self-directed home support services program.

“The benefit of having individualized funding is you can customize those supports to be responsive and flexible to a person,” added Renee.

Ideally, Renee is hoping for an in-home support system that is able to administer Tavia’s medications, bring her out into the community, and take her to activities such as her volunteer job.

This would also allow Renee to go back to work, since she wouldn’t have to stay home to care for Tavia herself.

“We’re very hopeful those supports will be in place. As a parent, it’s been really encouraging to see her [Tavia] taking a strong role and lead in advocating for people with epilepsy.”

Renee emphasized her and Tavia’s advocacy isn’t just for their own family needs.

“Our goal is that this isn’t just something for Tavia. Hopefully it will further support change for people with epilepsy or invisible disabilities.”

_________________________________

Is there more to this story?

Email: miranda.fatur@langleyadvancetimes.com

Like us on Facebook or follow us on Twitter

_________________________________

Just Posted

Snowfall warning for Kootenay and Paulson passes

Up to 30 cm expected in mountain passes Saturday and Sunday.

Music at the Hangar

On Sunday November 17 at 2 p.m., the Golden Seniors Centre will… Continue reading

Moose tests positive for Chronic Wasting Disease in northwest Montana

This is the first time the disease has been detected in the species in Montana

BCTF rejects mediator’s recommendations for settlement

Negotiations between B.C. teachers and the province will continue

Kicking Horse Canyon Project Phase 4 team presents highway closure plan to Golden

By Keri Sculland With files from The Golden Star Golden residents had… Continue reading

Bye bye Bei Bei: Giant panda born in U.S. zoo heads to China

Panda heads back to China as part of cooperative breeding program

B.C. to advocate for frustrated, confused, unhappy cellphone users, says premier

Maple Ridge New Democrat Bob D’Eith to advocate for more affordable and transparent cellphone options

B.C. man who killed Belgian tourist near Boston Bar gets life in prison, no parole until 2042

Sean McKenzie pleaded guilty to second-degree murder of 28-year-old Amelie Christelle Sakkalis

‘Very disrespectful’: B.C. first responder irked by motorists recording collisions on cellphones

Central Cariboo Search and Rescue deputy chief challenges motorists to break the habit

Daily cannabis linked to reduction in opioid use: B.C. researchers

Researchers looked at a group of 1,152 people in Vancouver who reported substance use and chronic pain

Bids down, costs up on Highway 1, B.C. independent contractors say

Rally protests NDP government’s union-only public construction

Members of little people community applaud change to drop ‘midget’ term

‘It’s not about sensitivity,’ says Allan Redford, the president of the Little People of Canada

Little progress in preventing sudden infant deaths since last report: BC Coroner

Coroners panel studied 141 sleep-related sudden infant deaths between 2013 and 2018

Most Read